Seriously....

it's bad enough that I don't take other people's advice...but I can't even take mine...although I made the mistake of telling Lexi about my comment in my last blog and she actually followed through..yes..whacked me upside the head with a magazine..and it hurt! But I couldn't get mad because after all she was just doing what I'd asked and...even though the gleam in her eye made me think she liked it a little too much...it was a very sweet gesture that she would remember and follow through.

So now I have written a very nice email to the editors of that magazine asking them why they didn't include TNBC....to which they(she) made the mistake of emailing me back that this article was about significant advances in Breast Cancer treatment presented at the symposium and there was nothing significant regarding TNBC......

First-nice choice of words...nothing significant....slap in my face

Second-should have double checked that info love ...because in this day and age of ..oh I don't know..the INTERNET...anyone can google just about anything...and I did! And guess what I found!!!! One of the keynote addresses on Sat. of the symposium was about how they had found a direct link between an over expression of a growth factor receptor bound protein GRB7 and recurrence in TNBC and how inhibiting this growth factor not only cut down recurrence but helped the chemo drugs to work more effectively!!!!!!!!!!!!!!!!!!!!! Now I don't know about you, but I consider that pretty freaking significant! And so I sent her a response with that link and said how more than anything I was saddened that the writer and editors didn't think that some of the first research that has happened about effectively fighting TNBC was "significant".

Third-And I didn't realize this until Ed pointed it out but....chickypoo editor lady should really have been more careful about how she responded because this could be construed as racism! Now you may be wondering how I got there so I shall explain. TNBC in America strikes mostly African Americans as they make up 85% of those diagnosed with TNBC. And even more alarming, the 5 year survival rate for them is a mere 14%!!!!!!!!!!!! That is horrific. So to say that nothing significant was talked about when in fact it was... basically says we don't really care what happens to that group. I have considered forwarding all of this to the Rev Al Sharpton but I am not sure I want to head down that road just yet.

Anyway...while I am still adrift in that ocean I talked about last time....I am not so panicky about the sea monsters and storms that may pop up during my journey to the other side. I realized while reading all of this stuff that my doctors treated me as aggressively as they could and with as much haste as they could and so now it is out of my hands and theirs really. I am content to trust in the plan that has been laid out for me and once again go back to celebrating today..and tomorrow...and all those tomorrows I have yet to see. Now I can't guarantee that I won't slip and fall into panic mode again..in fact I am sure I will, but...I'm ok with that too...and besides...that's what a nice glass of Riesling is for:)

So for now I am planning on surviving(yes surviving) the next 6 weeks the girls have left of school and the complete zaniness that will entail while I check things off my bucket list(yeah...I made one!), enjoy the fact that my hair is still growing and getting cuter everyday(or so I keep telling myself when I sigh at the fact that it does what it wants and I have no control) and plan for a summer of sun and fun to make up for last year:)

One last thing...this year I WILL be running...ok ok, walking, in the Komen race in St. Louis on June 13th with Ed and the girls and anyone who wants to join us. If you can't, or simply don't want to risk the fact that it could be 90 with 90% humidity that day(which believe me I totally get) you can support us by going to-

www.komenstlouis.org/site/TR?pg=personal&fr_id=1050&px=1085687

Thanks.

Blog ya later-
K